urticaria. angioedema. mcas.
Advice on urticaria, angioedema and MCAS.
We advise and accompany people with urticaria, angioedema and mast cell diseases such as MCAS. Together we look at your findings, arrange your complaints and clarify the next steps in diagnostics, therapy and everyday life.
what.we.do
Listening. Understand. Accompanying.
Many people come to us after a long search for answers. We take our time, bring order to findings and experiences and look with you for a way that carries in everyday life.
membership
Become part of the association. Members receive advice at a reduced rate, people in emergencies are non-contributory members.
Become a memberself-help
Once a month, our support group meets online and on site. Moderated exchange and curated knowledge.
To the groupCommunity
In our digital groups, people interact on different topics, such as medical gaslighting or nutrition.
For exchangeworkshops
Knowledge and exercises for everyday life: on the nervous system, EFT and meditation, as well as open rounds of questions.
To the workshopsadvice
Personal conversations about urticaria, angioedema and MCAS. Psychological counseling, nutritional counseling, supervision and spiritual care.
Select an appointmentcollaboration
You want to get involved? We welcome people who support our work.
Get in touchknowledge
Knowledge that classifies.
MCAS and urticaria: a classification
Both diseases can cause similar ailments. Why careful clarification is important and what risks a premature determination entails.
Read moreAnaphylaxis: Recognizing and Acting Properly
Anaphylaxis can become life-threatening within minutes. What triggers are common and what to do in an emergency.
Read morewas.us.distinguishes
We ask other questions.
The way knowledge is created determines what is ultimately considered knowledge.
Our work is not tied to pharmaceutical companies, clinics, registries, research institutions or care networks. Clinics, registries and research institutions generate knowledge from their data. We ask other questions. This creates different knowledge. Not better knowledge. Not worse knowledge. Other than that.
We often accompany those affected for months, sometimes years. Many turn to us if they still have complaints or are looking for further explanations despite the guideline-compliant treatment.
We finance our business with the income from our consultations. This is how we secure our independence. What remains beyond that flows into other projects, such as the ME/CFS Compass, our offer for people with ME/CFS.
Independence and transparencyknow.das.helps
workshops
Knowledge and practice from many years of experience. All workshops take place online once a month, from 7 p.m. to 8 p.m.
how.we.work
What our work wears.
From many years of working with people with urticaria, angioedema, MCAS and other diseases, we know what people with chronic diseases need: Time, orientation and a counterpart who sees the whole person. This is what we align our work with: evidence-based, holistic and, above all, independent. We are networked with experts in urticaria, angioedema and other mast cell diseases. These experts support us in complex questions.
become a member
Become part of the association.
With your membership you support the independence of the association. As a member, you will receive advice at a reduced rate. A member area will soon be added, where you will find appointments, questionnaires and documents in one place.
Membership is open to all. People in emergencies are a non-contributory member of our company. Social responsibility
Preview of the member area, which will start shortly. We work according to the strict requirements of data protection, especially when handling health data.
incendi.magazin
People, systems, structures and their consequences.
Incendi combines science-related analysis with different perspectives and makes visible how medicine, power and society intertwine and what this means specifically for people.
Independent journalism at the intersection of medicine, power and society.
To the magazinenewsletter
News from the Urticaria Association.
Feel free to stay in touch with us.
We inform you about insights into urticaria, angioedema and other mast cell diseases, new publications and workshops. As a thank you you you will receive our edition ‘Incendi Ethics Special’.
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exchange
Exchanges under Affected.
Once a month, our support group meets online and on site. Moderated exchange and curated knowledge, independently guided.
In our digital groups, people with urticaria, angioedema, mast cell-associated diseases and ME/CFS share experiences, strategies and questions from everyday life. We operate several digital groups on different topics, e.g. medical gaslighting or nutrition, etc.
Learning from each other
Experiences of people who experience similar things.
A protected space
This is about your experiences and questions, nothing else.
Among those affected
People talk to each other who know what it feels like.
Self-help group Facebook Coming Soon
noa · no one’s agenda
Independence needs its own structures.
The Urticaria Association is part of NOA · No One’s Agenda, a decentralised platform that connects people, initiatives and organisations without giving them a common agenda.
NOA creates space for independent exchange, access to knowledge and the development of joint projects. Each organisation retains its independence and decides for itself who it works with and what its goals are.
The idea behind it is simple: If you want to act independently, you need structures that make this independence possible.
Discover NOA