who.we.are
About us
The urticaria association was founded in 2018 because there was no separate contact and counseling center for people with urticaria for a long time. Since then, we have been accompanying people with urticaria, angioedema and mast cell-associated diseases.
attitude
Our own way
Our approach differs because we consider it necessary to go our own way within the current health care system. We believe that real change is only possible if values such as sustainability are at the heart of everything and people.
For us, patient well-being always comes first, ahead of all monetary interests. We are convinced that medical care based on profit maximization will not last in the long term and will ultimately fall back on society as a whole. That is why we have deliberately chosen to act independently and transparently, free from the influence of the pharmaceutical industry or other financial interests.
Our work is characterised by a holistic approach: We take a comprehensive look at the needs of our patients and ensure that they have access to relevant information, comprehensive advice and targeted support. Fast, flexible and unbureaucratic.
Why we go our own way
In a healthcare system that is increasingly under pressure and in which unmet needs are growing, we rely on innovative solutions that really take people's needs into account. We go our own way because we are convinced that only such an approach ensures long-term success for people's health and well-being.
Our vision is to provide healthcare that is sustainable, human and empowers society as a whole. We create spaces for knowledge, exchange and self-help and support our members on their way to more health and well-being.
mission statement
What we stand for
Vision
We want a world in which chronic diseases with high physical and psychological suffering are taken seriously.
We work daily to contribute to de-tabooization and to strengthen scientific attention.
Our goal is a central point of contact where those affected feel in good hands.
Mission
In a time of information overload, it is often difficult for those affected to find reliable and relevant information bundled.
We bundle, arrange and prepare information in such a way that it is understandable, accessible and up-to-date.
This work is supported by a team of stakeholders that brings together perspectives from different areas.
mission
Affected in action for affected persons.
We understand health as a high asset that needs to be protected and taken seriously.
We accompany people with urticaria and related diseases as a reliable point of contact.
Our work is independent, transparent and geared to the well-being of those affected.
Basic attitude
Our work serves the common good.
Sustainability and the protection of the environment are key values for us, as health is inextricably linked to people's living conditions.
assessment
founding
Initiator and founder of the association is Silvie Gross, MSc. The idea was born in 2015, after many years of own serious illness. In 2018, the project was implemented together with a small group of people affected.
In the following years, she worked intensively in the health and self-help landscape, participated in international congresses and collaborated with researchers and organizations from different countries. Independence and transparency became the central focus of her work.
Today she deals with the analysis of these relationships, with digital health and with new forms of self-help. She writes, gives lectures and is chairman of the association.
working method
How we work
We do not recommend any content, products or offers of third parties without having carefully checked and classified them beforehand. We take a close look at studies, digital applications, webinars and other offers, also in exchange with our Ethics Council.
We do not see our work as part of third-party marketing or exploitation structures. The trust of those affected is the basis of our work, and we handle it carefully.
Responsibilities
Social responsibility
Health arises in the interplay of medical care, social conditions and real life circumstances. Where these structures do not work, gaps arise in which increasingly chronically ill people fall into.
For us, responsibility means not leaving people alone when systems reach their limits and giving orientation where situations become confusing. Success shows itself for us where people find orientation again, decisions become possible and stability arises.
Our support is open to all. People in proven emergencies are a non-contributory member of our company.
Milestones
milestones
- 2018
- Founding of the Urticaria Association and Incendi magazine
- 2019
- Establishment of the advisory body and establishment of an independent ethics council
- 2021
- First own data collection on experiences and histories
- 2024-2025
- Years of great challenges that have shown us that self-help needs new, sustainable structures
- 2025
- Reorientation of Incendi and start of work on SH 2.0, a model for independent and transparent self-help
- 2026
- Restructuring of the Association
network
Our network




histameany: Products for people with MCAS and intolerances, developed by a biologist who has MCAS himself. We do not receive any payments for this. histameany annually provides products for raffles among patients and grants us a discount.