This page explains the principles we have been working on for years and why we deliberately do NOT do certain things.
Transparency and conflicts of interest
We observe that individual actors work in several roles at the same time. For example, in medical care and in commercial offers for those affected.
These connections are not visible to many people. Offers such as webinars, programs or digital applications appear supportive at first glance, but are in an economic context.
Especially in the sensitive area of chronic diseases, this creates a tension between care, information and monetary interests of third parties, which we deliberately do not support.
Our attitude
We do not recommend any content, products or offers of third parties without having examined and classified them intensively beforehand.
In doing so, we deal critically with studies, digital applications, webinars and other offers in exchange with our Ethics Council.
independence
We do not see our work as part of third-party marketing or exploitation structures.
We see time and again that patient organizations are involved in systems in which they contribute to the dissemination of services that primarily serve other interests.
We deliberately do not take this path.
responsibility
The trust of those affected is the basis of our work.
Building that trust over many years has been a long process. We see it as our responsibility to deal with it carefully and not to put it at risk for external interests.
Classification
The healthcare system is complex and characterized by different interests.
This is precisely why it is important to look closely at what information is conveyed, who benefits from it and what role patient organisations play in it.